February 2022
Issue #1
Welcome to THRIVE’s first newsletter!
The goal of this newsletter is to inform our various stakeholders, including patient partners, faculty, and
staff, of the most recent progress we’ve made, to communicate updates, changes, deadlines, and new
information, and to gather feedback from everyone involved in making THRIVE a success.
Thank you for taking the time to read the newsletter!
Important Announcements
● All THRIVE Dropbox folder - You should have already received an invitation
to this folder, but you may be required to create a Dropbox account or
verify your email address. Email Chelsea Cloyd or David Clark if you are
having any access issues.
● Official PCORI contract start date is January 1, 2022
Coordinating Center Updates
Patient Partnership Leadership Center
● Scope and mission statement
● Participant partners reviewed feasibility
storyboard
Clinical Coordinating Center
● Feasibility protocol almost finalized
● Enrollment site application drafted
● Manual of Procedures in process
Data Coordinating Center
● Participant-facing study application
design in progress
● DSMP creation in progress
Administrative
● Administrative & Organizational structures
● Contract is signed, effective date Jan. 1, 2022
● Subcontracts to be executed by March 1st.
In the works!
● Patient-facing website
● Webpage for interested enrollment sites on MPOG website
Timeline
Dates
Milestone
1/1/2022 - 6/30/2023
Feasibility Study Phase - we are here
7/5/2022
Begin feasibility patient enrollment (UM and WUSTL)
7/1/2023 - 6/30/2028
Full Study Phase
Emerging Literature
Updated Guidance on the Reporting of Race and Ethnicity in Medical and Science Journals
Guidelines on the reporting of race and ethnicity in medical and science journals have recently been updated by the
American Medical Association. This editorial
, published in JAMA, “provide[s] recommendations and suggestions that
encourage fairness, equity, consistency, and clarity in use and reporting of race and ethnicity in medical and science
journals.”
Suggestion Box
Suggestion Box - tell us the kinds of updates you would like to recieve!
